Thursday, March 06, 2008

The family is amazing. I cannot really put into words all that I am feeling at the minute, but I can say that they are truly deserving and could stand shoulder-to-shoulder with the other families ABC has honored.

Mom and Dad are 58 and on their second turn at raising children, this time foster children. They have adopted 4 and have 1 permanent-placement foster child. These are the ones they have kept. They also have sheltered over 50 other foster children in the past 22 years. Why is that special? Well, all five of their second-turn children have medical disabilities, some of them profound. Yet, these children are being raised in a family where they are loved and accepted and "normal" compared to their siblings. They are in a diverse neighborhood that embraces their differences and treats them like any other child.

Mom and Dad encourage the children to be as active as possible, giving no thought to ideas that being disabled might be a barrier to the activities they wish to pursue. They attend all the games, recitals, and gatherings of their children's hobbies. They also attend every medical appoint and therapy session of all of their children. From every aspect of their care, Mom and Dad are deeply involved. One example is the sacrifices they make so that the oldest can participate in a wheelchair basketball league that has tournaments all over the country.

Mom runs the local chapter of a Spina Bifida support group, volunteers at Children's Hospital, advocates for public accessibility in various venues (panels, boards, etc.), and supports parents with disabled children all over the nation. Mom and Dad also run (along with her husband) a medical equipment exchange closet so that families can have what they need to care for their children.

Their house is not set up for handicapped children, nor is it anywhere near the right size for a family of seven. Still, they manage to eat together most every evening and make do with what they have without complaining. When their first four children join the fray, the home feels more like a can of sardines, yet they are as committed to their new siblings as are their parents. It is a family that focuses on what they have rather than what they do not.

I was truly humbled by interviewing them today. They could not understand why we wanted to nominate them. Mom and Dad see themselves as just doing what needs to be done. I am quite worried that I will let them down by not truly conveying the magnitude of their sacrifice, their commitment, their love, and their needs in the brief format ABC allows for nominations.

I am praying that I can honor their work in mine.

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