My day thus far...

Fall asleep around 2:30 AM.
Wake at 4:42 violently nauseous.
Take Zofran.
Feed Amos early.
Take Amos outside.
Drag yourself back inside because your heart is starting to race.
Take fresh ice packs back to bed.
Try to lie still enough for your heart to calm.
Writhe in bed until just after 10.
Stumble first to the bathroom to take more Zofran, even though it is too early.
Get fresh ice packs.
Fall back onto the bed.
Text best friend of your misery.
Become frightened over arrhythmias.
Blood pressure tanks because you will eventually be pooping.
Stumbled to bathroom floor.
Vomit.
Writhe more.
Text more.
Realize you failed to remember first-of-the-month heart worm pill for Amos.
Crawl back to bedroom and pull yourself up into bed.
Heart racing and beating irregularly.
Get out of bed.
Faint.
Drag yourself downstairs for fresh ice packs.
Crawl into GREEN chair.
Try to read.
Post one article to Facebook.
Screen blurs.
Full body tremors start.
Migraine starts.
Wail because because your migraine meds are upstairs.
Realize it is time to poop.
Stand.
Faint.
Try to stand again.
Puke.
Crawl to half-bath.
Poop and puke at the same time.
Fall to the floor, miraculously avoiding vomit on the floor.
Stand.
Faint.
Crawl back to the GREEN chair.
Sleep some.
Wake.
Move.
Heart skyrockets.
Head explodes.
Clammy.
Realize blood sugar is crashing.
Stand.
Faint.
Stand.
Faint.
Crawl to kitchen.
Pull yourself up the cabinets to the counter and reach for the glucose tablets.
Collapse to floor.
Contemplate ordering a guillotine off of Amazon.
Try to stand.
Faint.
Wait.
Stand.
Get fresh ice packs.
Stumble back to GREEN chair.
Text best friend desperation.
Swallow more Zofran.
Stare at crucifix for several hours.
Stand.
Faint.
Crawl to stairs.
Crawl up the stairs.
Crawl to the bathroom.
Pull yourself up the drawers to sit on the tub.
Take migraine meds without water.
Slide into tub and turn on water.
Peel off soaking pajamas and try to wash remnants of puke from your person.
Drag yourself over the edge of the tub and lie on the bathroom floor shivering.
Stand.
Faint.
Wonder why it is you leave the best cane in the car.
Drag yourself to the bedroom.
Pull on fresh pajamas.
Break out the big guns by putting on Emily's GREEN socks.
Manage to stand without fainting.
Check blood pressure.
88/52 HR 167
Stare at bedroom crucifix.
Stumble to the stairs.
Slide down the stairs.
Stumble to the kitchen.
Down two glasses of Gatorade.
Fetch icepacks.
Turn to go back to the GREEN chair.
Faint.
Be grateful for blanket still on the kitchen floor.
Crawl to the GREEN chair.
Stare at crucifix again.
Pull yourself into the GREEN chair.
Nearly suffocate Amos whilst you weep.
Reach for computer.
Drop computer.
Curse loudly.
Pick up computer.
Try to capture day thus far.

This was my initial dysautonomia diagnosis.  Clearly life has gone downhill since August 6, 2010.


Heart pounding.
Head exploding.
Body trembling.

Weeping.

Couldn't imagine this life without Amos.